weblinks - role models


The following is a list of personal and business websites of some inspiring individuals who use AAC systems.

Individuals who use AAC

Please contact us if you want to suggest other people to add to this list. We would welcome your suggestions, thank you.

Beth Moulam - independent living, travel, education, sport and AAC

Toby Hewson, Just Different - challenging outdated and often un-informed perceptions of disability

Simon Stevens - independent disability issues consultant, trainer and activist

Simon Wilson, Simonsable - independent disability trainer and consultant

You may be interested in Martin Pistorius' book, Ghost Boywhich recounts his early life with locked-in syndrome ...

Ghost Boy is the compelling story of Martin Pistorius who at the age of 12 fell inexplicably sick. First he lost his voice and stopped eating, within eighteen months he was mute and wheelchair-bound. Martin's parents were told that an unknown degenerative disease had left him with the mind of a baby and with a poor prognosis for survival.

The book eloquently weaves its way as Martin recounts his journey of recovery against all the odds. It is a brave and moving account of his struggle to communicate in a world full of changes. Martin describes himself as ‘a man-child reborn in a world he didn't know’, unable to remember anything before his illness but clearly aware of all around him in his world of silence. Through Martin's story we get a glimpse what it is like to be unable to communicate yet feeling and understanding everything. Martin's emergence from his darkness enables us to celebrate the human spirit and is a wake-up call to cherish our own lives.

"It is a deeply affecting and at times shocking book... The Diving Bell and The Butterfly but with a happy ending."
The Sunday Times, 17 July 2011

"[Pistorius’s] levels of empathy are remarkable, perhaps because he was forced for so many years into the role of watcher and listener, hearing people unburden their problems around him, absorbing their pain without them knowing... [his] communication is strikingly direct, almost fearless in the way he confronts emotional reality." 
Catherine Deveney, Scotland on Sunday

"Martin tells the story of his remarkable recovery—and how he eventually came to find love, a home and a job… Now in a deeply moving – and ultimately uplifting - new book, Martin Pistorius tells the amazing story of life as The Ghost Boy." 
The Irish Mail

January 2013